PLEASE Consider Ordering supporting Myasthenia Gravis with one of Our custom Myasthenia Gravis related items. Please note, we can customize items for any group. It's a great way to empower people while raising funds for a good cause.
I will be creating items for the Global Genes Network and Dysautonomia in the near future.
Among several of my personal medical conditions, I am most impacted by Myasthenia Gravis. The Myasthenia Gravis Foundation site defines Myasthenia gravis (pronounced My-as-theen-ee-a grav-us) or MG as a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups. The name itself comes from the Greek and Latin words meaning "grave muscular weakness."
Personally, I am greatly affected by MG. I suffer from significant muscular weakness system from MG related symptoms. My strength, fatigue and ability to push myself are greatly impacted by MG. It is because of MG and MG combined with my other disorders that I am not able to access or maneuver through many of the outdoor scouting activities. For me and my family, MG has been the most challenging of all my disorders. IT is the most limiting and compounds challenges caused by my previous disorders. At one point I was completely bedridden. Now, with a balance of a variety of treatments this has decreased to about 50-60%.
That being said, in order to be able to participate in activities, especially my scouting and STEAM programs, I must conserve my energy. Otherwise I am likely to have significant breathing challenges, weakness or even loss of conscious. You can help us in our efforts either through a direct donation or by ordering one our our custom designed items. All profits from our sales are donated to the Far West Wheelchair Athletic Association for the purpose of purchasing an all terrain wheelchair.